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The prime minister’s challenge on dementia called for 25% of people with dementia to be registered on Join Dementia Research (JDR) by 2020.  However, only 18% of total volunteers signed up to JDR had a diagnosis of dementia in the Leeds Clinical Commissioning Group (CCG) area at the beginning of 2018. So, they worked very […]

The latest Join Dementia Research volunteer registration data are now available. March 2019 highlights: There was a spike in new registrations last month with 722 new volunteers registering in March 2019, including 123 people with a dementia diagnosis – bringing the total number of Join Dementia Volunteers up to 40, 286 NHS Bristol, North Somerset […]

ERICA Project Update for Join Dementia Research In April 2018 the Office of the NIHR National Director for Dementia Research (NDDR) started delivery of the Embedding Research in Care (ERICA) Project. This post will provide an ERICA Project Update for Join Dementia Research. The project objective being to ensure that NHS Trusts, and healthcare providers, were […]

Join Dementia Research has helped more than 40,000 people connect with research studies over the past four years. As a result, researchers and their studies have massively benefited, with more than 11,000 study enrolments in this time. However, if we are going to turn the corner and find ways to better prevent, diagnose, treat, care for and maybe […]

Background Each month we publish Join Dementia Research Volunteer Data on new registrations to help organisations and individuals to discover how many people are registering on Join Dementia Research. This data is broken down by CCG, STP, and NIHR regions and provide an overview on the source of registrations, number of people with and without […]

Earlier this week I visited Dr Chris Clarke and Lauren Roberts from Tees, Esk and Wear Valleys NHS Foundation Trust (TEWV), to catch up on their work. Chris and Lauren both play key role in the Trusts efforts share Join Dementia Research with all newly diagnosed patients. TEWV is a large trusts, diagnosing around 3,500 people […]

Lancashire Care NHS Foundation Trust have become the first to achieve the Dementia 2020 Challenge objective that 25% of people who are newly diagnosed with dementia (in January 2019) registered on Join Dementia Research. This is due to Memory Clinic staff, led by Yvette Griffin (Team Manager at Fylde Coast Memory Assessment Service) and Laura […]

The latest Join Dementia Research volunteer registration data has been published today. February 2019 highlights: 524 new volunteers registered, including 80 people with a dementia diagnosis NHS Bristol, North Somerset and South Gloucestershire CCG also has the most people with dementia registered on JDR with 114, closely followed by NHS Vale of York CCG (95 […]

People across Bristol with a diagnosis of dementia and interest in taking part in research will have the opportunity to sign up to the Join Dementia Research service this month, thanks to a collaboration with the Bristol Dementia Wellbeing Service (BDWS). BDWS has approximately 700 service users who have consented to be contacted about research but may not be […]

Fylde Coast Memory Assessment Service wrote to everyone who received a diagnosis within the past 12 months offering them the opportunity to engage in dementia research by registering on Join Dementia Research. This mailing was done as part of a new initiative piloted by Lancashire Care NHS Foundation Trust. There was a 5% uptake, with […]