Join Dementia Research Volunteer Registration Data

Published: 01 July 2020 – Join Dementia Research Volunteer Registration Data

Join Dementia Research Volunteer Registration Data is a monthly statistical publication produced by the Office of the NIHR National Director for Dementia Research to support delivery of the 2020 Dementia Challenge objectives.

This report provides information on Join Dementia Research volunteers, broken down by Clinical Commissioning Group, Sustainability and Transformation Partnerships, Health Board / NIHR Region, detailing the number of registrants with and without dementia, diagnosis type, age, location, gender and how they heard about the service. The total number of volunteers with dementia is compared to NHS England data on the number of people with a dementia diagnosis to enable calculation of the proportion of people with dementia registered on Join Dementia Research.

This report covers the period from 1 July 2014 to 30 June 2020 (NHS diagnosed number is from March 2020).

UPDATED NOTE 6TH JULY 2020:

Please note in June 2020, JDR changed the the options volunteers are given on to record how they heard about JDR. These changes are as follows: 1. ‘Other healthcare provider’ has been removed 2. ‘Television’ has been renamed to ‘TV’ 3. ‘Event / Exhibition’ has been renamed to ‘Event exhibition’ 4. ‘Memory walks (Alzheimer’s Society)’ has been renamed to ‘Memory walks’ 5. ‘Lewy Body Society’ has been added as a new option 6. ‘Signed up by tablet/kiosk’ has been added as a new option.

This report has not been updated to reflect the changes made within the system, as a result, the information on volunteer recruitment source is only partially correct i.e. correct where a category did not change, incorrect for categories which had a name change or have been added.

We will work on correcting the report as soon as possible

(please note this report has to be downloaded and run on excel to enable the full functionality, it cannot be used in the google drive)

If you have any questions relating to this report contact adam.smith@nihr.ac.uk


Learn Join Dementia Research Awareness Tool Uptake Report

Published: 01 July 2020 – Learn Join Dementia Research Awareness Tool Uptake Report

Learn Join Dementia Research Awareness Tool Uptake Report is a monthly statistical publication produced by the Office of the NIHR National Director for Dementia Research to support delivery of the 2020 Dementia Challenge objectives.

This report provides information on the numbers of people completing the learn awareness tool, broken down by NHS / Non NHS Staff, Clinical Commissioning Group, NHS Trust and NHS Region.

This report covers the period from 1 February 2019 to 30 June 2020.

(please note this report has to be downloaded and run on excel to enable the full functionality, it cannot be used in the google drive)

If you have any questions relating to this report contact adam.smith@nihr.ac.uk