Case Studies

Simplifying Engagement in Dementia Research in Mental Health Trusts and Community Settings

11 April 2019

Emma (Research Assistant) and Alicia (Clinical Studies Officer) with Thunder the Therapy dog at the Tea Cosy Café, Rothwell.

The prime minister’s challenge on dementia called for 25% of people with dementia to be registered on Join Dementia Research (JDR) by 2020.  However, only 18% of total volunteers signed up to JDR had a diagnosis of dementia in the Leeds Clinical Commissioning Group (CCG) area at the beginning of 2018. So, they worked very […]

Supporting patients to complete Join Dementia Research registration forms in clinic

6 March 2019

Lancashire Care NHS Foundation Trust have become the first to achieve the Dementia 2020 Challenge objective that 25% of people who are newly diagnosed with dementia (in January 2019) registered on Join Dementia Research. This is due to Memory Clinic staff, led by Yvette Griffin (Team Manager at Fylde Coast Memory Assessment Service) and Laura […]

Memory Clinic Mailing – the best way to spread awareness of Join Dementia Research

13 December 2018

Fylde Coast Memory Assessment Service wrote to everyone who received a diagnosis within the past 12 months offering them the opportunity to engage in dementia research by registering on Join Dementia Research. This mailing was done as part of a new initiative piloted by Lancashire Care NHS Foundation Trust. There was a 5% uptake, with […]

Fighting Dementia with a ‘Volunteer Army’

31 August 2018

Northamptonshire Healthcare NHS Foundation Trust (NHFT) Innovation and Research Team are currently working with Voluntary Impact Northamptonshire (VIN) to create an army of volunteers who champion Join Dementia Research, spreading awareness about the service both around the Trust and through the County. This initiative has created a  social movement of engagement. Read the full case […]

Raising Awareness about Dementia Research in Tees, Esk, and Wear Valleys

20 July 2018

Tees, Esk & Wear Valleys (TEWV) NHS Foundation Trust are committed to raise awareness about Join Dementia Research, so that people living with dementia know about research and how they can take part in studies. Lauren Roberts, a Research Assistant at TEWV, shares the various approaches that are currently being undertaken to achieve this goal.

NHS Fylde and Wyre Breaks into the top 10 for CCG % of people with Dementia on Join Dementia Research

9 July 2018

Lancashire Care NHS Foundation Trust and NHS Fylde and Wyre CCG are one of the three areas working with the NIHR as exemplars for  embedding the promotion of Join Dementia Research into normal care pathways – delivered as part of the Embedding Research in Care (ERICA) Project. Since April 2018 the Trust has been piloting […]

Bringing a County Together to Champion Join Dementia Research

4 July 2018

Photo of team in Lincolnshire who played a key role in helping Lincolnshire become a Join Dementia Research champion county

The county of Lincolnshire have come together to support people with dementia and their families in getting involved in research. All three of Lincolnshire’s NHS Trusts and Lincolnshire County Council  joined forces and pledged to be a Join Dementia Research champion county. This initiative was proactively led by the NIHR research delivery team at Lincolnshire Partnership […]

Increasing Join Dementia Research recruits through GP engagement

2 January 2018

A new initiative piloted in the West of England with local GP surgeries, has revealed a successful approach to recruiting volunteers to Join Dementia Research. A joint project between the NIHR Local Clinical Research Network (LCRN) and the Office of the NIHR National Director for Dementia Research, aimed to work alongside GPs in the region […]

Tees, Esk & Wear Valleys initiative results in substantial rise in volunteers

15 December 2017

Tees, Esk & Wear Valleys (TEWV) NHS Foundation Trust in the North of England has seen a substantial rise in the number of patients signing up to Join Dementia Research. This shift has increased since they have recruited a Research Assistant, Lauren Roberts, whose role is to promote and recruit patients to Join Dementia Research. […]