Updates

Registrations Ranking – New Dementia Research Volunteer Data

3 April 2019

Background Each month we publish Join Dementia Research Volunteer Data on new registrations to help organisations and individuals to discover how many people are registering on Join Dementia Research. This data is broken down by CCG, STP, and NIHR regions and provide an overview on the source of registrations, number of people with and without […]

Blog Post – A new approach being tested in Tees, Esk & Wear Valley

24 March 2019

Volunteers at TEWV Join Dementia Research

Earlier this week I visited Dr Chris Clarke and Lauren Roberts from Tees, Esk and Wear Valleys NHS Foundation Trust (TEWV), to catch up on their work. Chris and Lauren both play key role in the Trusts efforts share Join Dementia Research with all newly diagnosed patients. TEWV is a large trusts, diagnosing around 3,500 people […]

Supporting patients to complete Join Dementia Research registration forms in clinic

6 March 2019

Lancashire Care NHS Foundation Trust have become the first to achieve the Dementia 2020 Challenge objective that 25% of people who are newly diagnosed with dementia (in January 2019) registered on Join Dementia Research. This is due to Memory Clinic staff, led by Yvette Griffin (Team Manager at Fylde Coast Memory Assessment Service) and Laura […]

February Volunteer Statistics Published

4 March 2019

The latest Join Dementia Research volunteer registration data has been published today. February 2019 highlights: 524 new volunteers registered, including 80 people with a dementia diagnosis NHS Bristol, North Somerset and South Gloucestershire CCG also has the most people with dementia registered on JDR with 114, closely followed by NHS Vale of York CCG (95 […]

Collaboration between Join Dementia Research and Bristol Dementia Wellbeing Service

14 February 2019

People across Bristol with a diagnosis of dementia and interest in taking part in research will have the opportunity to sign up to the Join Dementia Research service this month, thanks to a collaboration with the Bristol Dementia Wellbeing Service (BDWS). BDWS has approximately 700 service users who have consented to be contacted about research but may not be […]

Memory Clinic Mailing – the best way to spread awareness of Join Dementia Research

13 December 2018

Fylde Coast Memory Assessment Service wrote to everyone who received a diagnosis within the past 12 months offering them the opportunity to engage in dementia research by registering on Join Dementia Research. This mailing was done as part of a new initiative piloted by Lancashire Care NHS Foundation Trust. There was a 5% uptake, with […]

November Volunteer Statistics Published

5 December 2018

The latest Join Dementia Research volunteer registration data has been published today. November 2018 highlights: 530 (438 in October 2018) new volunteers registered, including 76 (was 70 in October) people with a dementia diagnosis NHS Bristol, North Somerset and South Gloucestershire CCG remains at the top with the most JDR volunteers (1934 volunteers). This has […]

TEWV NHS Foundation Trust becomes an exemplar to embed research in care pathways

14 November 2018

Current drug treatments, improved care, and more efficient clinical tests for people living with dementia are only available now thanks to previous research studies. To this effect, two objectives of the prime minister’s challenge on dementia 2020 states that every newly diagnosed person should be offered access to research (through Join Dementia Research [JDR]) and […]

October Volunteer Statistics Published

1 November 2018

The latest Join Dementia Research volunteer registration data has been published today. October 2018 highlights: 438 (-2 on September 2018) new volunteers registered, including 70 (was 83 in September) people with a dementia diagnosis NHS Bristol, North Somerset and South Gloucestershire CCG has the most JDR volunteers with 1918 (significantly higher than the nearest with […]

September Volunteer Statistics Published

30 September 2018

The latest Join Dementia Research volunteer registration data has been published today. September 2018 highlights: 440 (+80 on August 2018) new volunteers registered, including 83 (was 51 in August) people with a dementia diagnosis Referrals from charity partners significantly contributed to this months volunteers, and increased traffic from internet searches. However for people with dementia, […]

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