The Learn Join Dementia Research Awareness Tool was launched in February 2019. Aimed at healthcare professionals, it has been designed to simply explain to staff what Join Dementia Research (JDR) is, and how it works, and how they could help support the service and encourage patients to register. Users watch a short film, answer questions, they are then provided with links to resources e.g. care studies, stats, materials and emailed with more information and a certificate.

The system records details of the people who complete the tool, contact details and the type of organisation they work for, and where they work.


The table below details the number of people who have completed the tool, and the types of organisation they come from:

Total number of people completed 739
Total number from CCGs 12
Total number from Trusts 527
Total number from GP Surgeries 102
Total number from non NHS sources 53
Total number from other NHS sources (including NIHR CRN) 45

 The tablet below identifies the top ten organisations, based on number of staff having completed the tool:

Leeds Teaching Hospitals NHS Trust 88
University Hospitals of Leicester NHS Trust 79
Lincolnshire Partnership NHS Foundation Trust 32
Blackpool Teaching Hospitals NHS Foundation Trust 24
Lancashire Care NHS Foundation Trust 24
Manchester University NHS Foundation Trust 20
Norfolk Community Health and Care NHS Trust 18
Humber Teaching Hospital NHS Foundation Trust 18
Leicestershire Partnership NHS Trust 17
East Lancashire Hospitals NHS Trust 15

To see the full list and review your own organisations uptake, please download the full stats here.

Next Steps

  • Write to NHS Medical Directors in late June to follow-up and provide statistics.
  • Continue regular social media promotion.
  • Using the stakeholder analysis, write to specific organisations asking them to share details with staff e.g. Trusts / CCGs / Colleges, and seek out events and opportunities to promote the tool.
  • Review JDR statistics from areas with high completion rates to determine if completion effects registrations and ordering of materials.
  • Use as an awareness tool during other ERICA activities.
  • Undertake a simple analysis to estimate number of NHS staff involved in the dementia care pathway to inform a target for total completions by 2025.
  • Work with Health Education England to establish ways to share the tool with NHS completing HEE Dementia Training.
  • Update to target social care professionals, once case studies on how best to promote JDR in social care are established.

Please support delivery of this initiative by telling your colleagues, sharing in staff newsletters and working on ways to embed use of this tool for all new staff. A sample newsletter item can be found here.