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Simplifying Engagement in Dementia Research in Mental Health Trusts and Community Settings

11 April 2019

Emma (Research Assistant) and Alicia (Clinical Studies Officer) with Thunder the Therapy dog at the Tea Cosy Café, Rothwell.

The prime minister’s challenge on dementia called for 25% of people with dementia to be registered on Join Dementia Research (JDR) by 2020.  However, only 18% of total volunteers signed up to JDR had a diagnosis of dementia in the Leeds Clinical Commissioning Group (CCG) area at the beginning of 2018. So, they worked very […]

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    Important Note

    We can only register a volunteer with their consent, or the consent of someone who holds appropriate power of attorney for the volunteer.

    Does the volunteer you are registering consent themselves to signing up to Join Dementia Research?

    Important Note

    Does the volunteer live in England, Wales or Scotland, and you hold appropriate power of attorney for them? In England and Wales, this must be lasting power of attorney (LPA) on health and welfare grounds and in Scotland, Welfare Power of Attorney.


    We cannot accept consent on someone else's behalf for people living in Northern Ireland unfortunately.

    Important Note

    As you do not have the volunteer's consent and do not hold an appropriate power of attorney for the volunteer, we are sorry but you are unable to register the volunteer.

    The volunteer can register themselves online or they can talk to one of our charity helpdesks to confirm over the phone that they agree to be registered on Join Dementia Research and for you to be their representative. You can find our helpdesk's phone numbers here