The latest Join Dementia Research volunteer registration data are now available.

November 2019 highlights:

  • Total number of volunteers to the end of November is 42,149 (5,636 with a dementia diagnosis, which is 1% of total number of people with a diagnosis – objective is 25% by December 2020)
  • NHS Fylde and Wyre CCG are the top CCG with the most people with dementia registered on JDR (134 volunteers), closely followed by NHS Bristol, North Somerset and South Gloucestershire CCG (125 volunteers)
  • NHS Fylde and Wyre CCG also remain as the top CCG for % population with dementia registered on dementia, with 5.38% of its population with dementia registered on JDR
  • Thames Valley and South Midlands is the top NIHR region by % with 1.35% of its population with dementia registered on JDR
  • November saw a large increase in the numbers of people living with dementia registering on JDR compared to previous months; 161 people registered this month
  • Referrals from memory clinics continue to generate the largest number of registrations of people living with dementia, closely followed by GPs
  • November saw newspapers as the third most common route for people living with dementia to be recruited; 13.6% possibly driven by the news that the aducanumab drug may be licensed.

You can access the complete dataset using the following link: http://nhs.joindementiaresearch.nihr.ac.uk/data-and-statistics/