Improving Research Accessibility in Non-research Trusts

Improving research accessibility in non-research Trusts

Project Description

In March 2012, the Government set an ambition for ten percent of people with dementia to be involved in clinical trials by 2015. For Barking, Havering and Redbridge University Hospitals NHS Trust (BHR) this meant embarking on an initiative to increase patient access to research. The Trust previously had a strong research presence across other areas like cancer and oncology, however very little activity was happening in dementia and neurodegenerative diseases.

With the proactivity of one research nurse, research moved further up the priority list.

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In a short space of eight months the following was achieved: Buy-in Trust wide that research was a priority All neurologist patients routinely asked if they are interested in taking part in research A patient’s interest in research involvement recorded on PAS, the Trust’s electronic patient information system All doctor/nurse inductions now include basic information on research and research activities across the Trust Patient-friendly information provided about research

Full Case Study

Knocking on an Open Door: Improving patient access to research in a new Trust

Top Tips

Resources

BHR Neurology Evaluation Results
Simple graphical presentation of the post implementation results in a single clinic.
BHR Neurology Research Assent Process
Drawing of the research recruitment process employed in the Neurology Department at BHR.
Clinical Research Capability Self Assessment
This is to be used in conjunction with the ‘R&D Operational Capability Statement’ to help self-assess a Trust’s readiness for research.
Community Memory Clinic Recruitment Process
Proposed model for recruitment from a community clinical based on model tested at BHR.
Planning Delivery, Measuring Success at BHR
Simple outline of the project objectives and deliverables.
R&D Department Research Capability Self-Assessment
This form allows networks to understand the capabilities of a Trusts R&D to agree support requirements.
Support for Making Induction Videos
This document provides tips and script samples to support the production of a research induction film. Useful for the first-time film maker, you do not need flashy equipment these days, a smart phone can shoot good quality usable video. Please find examples of researchers talking about their studies on the Join Dementia Research Youtube Channel.
Telling Our Stories – Advice for Film Makers
Guidance provided by Innovations in Dementia. A booklet based on experiences of a filming workshop for younger people with dementia at Age Concern Woodley.