Join Dementia Research Volunteer Registration Data

This data has not been updated since 05/10/2022 due to technical issues with the data.

Published: 05/10/2022 – Join Dementia Research Volunteer Registration Data

Join Dementia Research Volunteer Registration Data is a monthly statistical publication produced by the Office of the NIHR National Director for Dementia Research.

This report provides information on Join Dementia Research volunteers, broken down by Clinical Commissioning Group, Sustainability and Transformation Partnerships, Health Board / NIHR Region, detailing the number of registrants with and without dementia, diagnosis type, age, location, gender and how they heard about the service. The total number of volunteers with dementia is compared to NHS England data on the number of people with a dementia diagnosis to enable calculation of the proportion of people with dementia registered on Join Dementia Research.

NOTE – due to the way NHS Digital are currently publishing dementia diagnosis statistics, our reports comparison of JDR volunteers to the number of people with a dementia diagnosis in some areas, is not available for all CCG regions. It appears to be due to NHS Digital instead publishing data at a local council level. If you would like to undertake your own analysis you find find NHS data here – https://digital.nhs.uk/data-and-information/publications/statistical/recorded-dementia-diagnoses

This report covers the period from 1 July 2014 to 5 October 2022.

If you have any questions relating to this report contact the JDR Team


Learn Join Dementia Research Awareness Tool Uptake Report

Published: 27/3/2024 – Learn Join Dementia Research Awareness Tool Uptake Report

Learn Join Dementia Research Awareness Tool Uptake Report is a monthly statistical publication produced by the Office of the NIHR National Director for Dementia Research.

This report provides information on the numbers of people completing the learn awareness tool, displayed by NHS / Non NHS Staff, Clinical Commissioning Group, NHS Trust and NHS Region.

This report covers the period from 1 February 2019 to 27 March 2024.

If you have any questions relating to this report contact the JDR Team