Whole Organisation
Simplifying Engagement in Dementia Research in Mental Health Trusts and Community Settings
Project Description
In 2018, the Clinical Commissioning Group (CCG) in Leeds registered more people with dementia compared to any other CCG in the UK. Here, Holly Taylor, a Research Assistant at Leeds and York Partnership NHS Foundation Trust, shares how Leeds CCG achieved this.
- Trying to create a research culture is an ongoing and lengthy process but it is important to be persistent.
- Develop a personal approach to research engagement and have an individualised approach for different staff groups i.e. memory nurses vs consultants.
- Find the right meetings to attend to communicate your message.
Research noticeboard at Aire Court Community Unit

Bringing a County Together to Champion Join Dementia Research
Project Description
The county of Lincolnshire have come together to support people with dementia and their families in getting involved in research. All three of Lincolnshire’s NHS Trusts and Lincolnshire County Council have joined forces and pledged to be a Join Dementia Research champion county.
- Ensure you have a strong team leading the initiative
- Look to engage NHS Trusts and the County Council in the region – drawing on Dementia Strategies
- Make sure organisations are aware of the Government’s Dementia 2020 Challenge policy
- Look to keep all organisations engaged by having regular meetings and review progress
- Invite third sector organisations such as the local Alzheimer’s Society and other charities to be involved in collaborations to champion Join Dementia Research
- Join Dementia Research can be integrated into existing care pathways, and training and induction programs
Lincolnshire County Join Dementia Research Champion Team

Championing Research

Actively Engaging Trusts to Integrate Research into Care
Project Description
Southern Health NHS Foundation Trust identified an opportunity to improve their service by establishing a simple consent system which increases the number of clinicians actively recruiting to studies and enables more patients to be approached to take part in clinical research.
This was part of a wider campaign to embed and develop a research culture amongst all staff working in older people’s mental health.
- You need to get the executive board of the Trust involved
- It is important to engage all clinical staff in this process
- Keep it simple to minimise the amount of work that health professionals have to do
– directing patients to Join Dementia Research allows them to register themselves to the service to express their interest in participating in research
Hear About the Project