Online Join Dementia Research Awareness Tool

Project Description
Approximately  32.9% of Join Dementia Research volunteers living with dementia hear about the service through a healthcare professional. Further, the National Institute for Health and Care Excellence (NICE) recommends that health and care professionals should help people living with dementia and their carers find out about opportunities to take part in research, and empower them to make their own decisions about getting involved. The objectives of the Dementia 2020 Challenge states that appropriate staff should be able to signpost patients to Join Dementia Research, that all newly diagnosed people will receive information about JDR, and that 25% of people with dementia are registered with JDR by 2020.
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Help your patients join dementia research

    Creating a Research Friendly Culture

    Project Description
    Healthcare staff are essential in the recruitment of patients to clinical studies. For many reasons patients look to their local clinician or nurse for information so they can make meaningful decisions and choices about their care and treatment. We know that patients often prefer information to come from a trusted source. Staff have the ability to help people understand research, have dialogue with a potential participant and assist researchers to identify and enlist participants for a study. With around 2,000 staff at Camden and Islington NHS Foundation Trust (C & I) providing a service to approximately 500,000 patients from across the North Thames region, it was recognised that through training all healthcare staff, the profile of research could be raised and the number of patients into trials increased.
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    • Take a few minutes to complete all the modules of the online tool
    • Share the link with all your colleagues 
    • Register as a volunteer on Join Dementia Research yourself
    • Online Research Toolkit

      When talking to Trusts about research we are reminded that they have a focus on more than one disease area. Camden & Islington NHS Trust developed an online e-learning website to support the staff induction system.

    • Staff Leaflet

      Leaflets do not have to only be patient-facing, the NHS is the largest employer in the world, it is important that communications be balanced. This leaflet was developed for staff.

    • FAQs Handout for Clinicians

      Simple hand-out developed as a Frequently Asked Questions for new staff, recognising that research support comes at all levels – easy simple tool, FAQs are very useful!

    • E-learning Junior Doctors

      This slide set was used at Junior Doctor Induction, to increase awareness about the Trust’s research activities. You should consider complimenting with other media, to make the session interesting.

    • Planning Delivery and Measuring Success at C&I

      This is a simple outline of the project objectives and deliverables

    • Support for Making Induction Videos

      This document provides tips and script samples to support the production of a research induction film. Useful for the first-time film maker, you do not need flashy equipment these days, a smart phone can shoot good quality usable video. Please find examples of researchers talking about their studies on the Join Dementia Research Youtube Channel.

    • Filming Release Form

      A key lesson learned in the making of our films was remembering to get the consent of everyone included (even those in the background) if you plan to put it in the public domain.

    • Join Dementia Research Media Release Form

      This form is used for consent when photographing or filming people for promotion.

    Hear About the Project
    Video