Working Collaboratively to Raise Awareness

Building awareness of Join Dementia Research, so those diagnosed with a form of dementia have a chance to discover, get involved and participate in dementia research. The service looks to make it easier for anyone to have the chance to see what dementia research is taking place, both in their local area and across the nation.


Awareness campaigns

Messaging through text: Launching a pioneering text messaging service with GPs
The implementation of a Join Dementia Research Project Manager in the Clinical Research Network (CRN) East Midlands has seen a number of pilot schemes being trialled with success. One such pilot has been sending a text message out to patients at GP Practices signposting them to Join Dementia Research.
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Organising and running an awareness week
Dementia research gives individuals the opportunity to take part in new trials, learn about the condition and contribute to the development of treatment pathways and the care of future people with dementia. Raising awareness of such research is imperative for this progress to continue. Realising this, Lancashire Teaching Hospitals NHS Foundation Trust and Lancashire Care NHS Foundation Trust set up an innovative way to prioritise promoting dementia research in hospitals – a Join Dementia Research Awareness Week.
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Tailoring local initiative with partner organisations
The appointment of a Dementia Challenge Project Manager in the Clinical Research Network (CRN) East Midlands gave rise to the generation of an increased awareness of research, both amongst regional partner organisations and with the general public. As a result, the CRN East Midlands has supported a variety of dementia research awareness campaigns, promoting Join Dementia Research across the region. Having a chain of collaborative relationships has also allowed the network to work closely with other organisations such as Alzheimer’s Society’s and the University of Nottingham.
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Championing research

The things that have happened to me since I was diagnosed…
Hilary Doxford was diagnosed with early onset Alzheimer’s in 2012. An Alzheimer’s Society Research Network member, Join Dementia Research Champion and member of the World Dementia Council, Hilary works to promote global collaboration against dementia. She travels to meetings and conferences in many different countries, often talking about what Join Dementia Research has achieved, and encouraging other countries to set up similar initiatives.
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Handing Out Hope
While there is currently no cure for dementia, taking part in research often gives people affected by dementia hope again. When Chris Roberts was first diagnosed, research gave him and his wife Jayne, a new purpose in their lives. They now do all they can to ‘hand out hope’ to others, promoting dementia research and encouraging others to get involved.
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Integrating Research Champions within a Trust
In recent years, Tees, Esk and Wear Valleys NHS Foundation Trust has developed a number of initiatives to increase research opportunities for their staff and their patients, particularly in the field of older people’s mental health. One such initiative is the creation of Dementia Research Champions, members of the team in each of the Trust’s memory clinics. Their role is to inform their colleagues of new local research studies, to recruit their own patients and to encourage other staff to raise the topic of research in the clinic.
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