Developing Research with Primary Care

Project Description
To recruit to new research studies and clinical trials opening locally and how to keep abreast of the changes wrought by reforms taking place within the National Health Service, an opportunity arose for a project in East Anglia to address challenges in this through the advent of a new Primary Care Dementia Practitioner (PCDP) role. The chance to work with them from inception was seized to raise awareness about research with a group tasked with identifying and diagnosing memory problems in patients.
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  • Realise that, although roles and responsibilities may be subject to change, the value in relationship building and networking across the local area can be invaluable in the long run
  • Recognise that an approach for consent into a research study or clinical trial may be difficult around the time of diagnosis as this can be a stressful and upsetting time for the patient
  • Consider using Join Dementia Research materials tailored to the patients
  • PCDP Meeting Handout

    It is good to advantage of opportunities that arise to talk to NHS staff about research, particularly those not involved. These slides were used to present research to the local Primary Care Dementia Practitioner (PCDP) group – explaining research and links to the role.

  • Materials Checklist

    This checklist is used as a final test to ensure patient-facing materials are complete and appropriate. This example was completed on the new leaflet designed to be used by PCDPs.

  • Dementia Research Leaflet

    This leaflet was developed specifically for distribution by PCDPs, with input from patients and professionals.

  • Join Dementia Research Leaflet

    This is a patient-facing leaflet that describes how Join Dementia Research works and contains information about how to sign up to the service.
    More information about Join Dementia Research materials can be viewed at

  • Designing Information Products and Obtaining Ratification

    The NHS takes branding very seriously, and most local NHS organisations will have rules to ensure patient facing materials are appropriate (please check). This is Norfolk & Suffolk NHS Foundation Trust policy and guidance for production of patient facing materials.